At Heart Children NZ we know the desolation childhood heart disease can cause a child and their family. We are an organisation founded by heart parents, run by heart parents.
Heart Children New Zealand began 25 years ago, the legacy of new mums, Michelle Mann and Linda Davies who, despite the loss of their own heart babies, set about easing the chronic need for parental support and information.
Today, Heart Children New Zealand stretches across the nation, provides professional emotional and practical support, information, education, advocacy, specialized equipment and friendship to thousands of children, young adults and their families. A not for profit, Heart Children New Zealand are the sole organisation dedicated to this purpose. We receive no government assistance.
You may be surprised to learn that 12 babies are born with a heart defect every week in NZ . It’s the world’s most common birth defect. A smaller number of children will acquire a heart condition as a result of rheumatic fever, cardiomyopathy and Kawasaki disease. That’s around 630 additional children and their families affected by childhood heart disease every year.
At Heart Children New Zealand we believe each and every child, young adult and their family deserves to receive personalized support in a way that meets their individual needs; in the hospital, at home and every stage of their journey. All our services are available free of charge.
As a support group we’re here to help. Please call us on 09 377 9950 or to find out more information visit www.heartchildren.org.nz.
